

One thing about the Paley office is the wait. The wait is ridiculous. Hours and hours we waited. But, we were prepared and we didn't mind. When we finally got in the office with the SuperDoc, we didn't feel rushed and he didn't seem to mind the screaming baby. It was interesting to meet a man who was going to change your family's life. He was normal, almost. He cracked a few jokes and seemed to have a level of "swag" that you want in your daughter's pediatric orthopedic surgeon. If there is one guy that I want to be confidence about what he's doing, its the guy messing around in my daughter's hip and knee joint. People keep asking us if we liked the doctor and let me tell you this - It doesn't matter how we feel about the guy, he is confident he can fix my daughter's leg. He can be an a$$ as far as I'm concerned. But he isn't. He was calm, answered our questions, and has created an environment where my family feels safe and surrounded by people who care. So, If anyone has found this blog by virtue of a good search that started with "no femur", which was our scenario, go ahead and start saving the money and make a trip to see Paley. Just do it. Please.
As you may or may not know, Lydie's hip is all kinds of funky. That needs to get fixed, regardless. Paley is going to do that surgery at around age two - So December 2014. Then about the age of four we can start the lengthening process. Its going to take a lengthening at 4, 8, 12, and a shortening at 9 or 11. So, assuming that everything goes perfect and we get as much length as we can and no complications, we are looking at 5 surgeries and she is done at 12. Crazy huh?! From "We need to amputate" to "We can always grow new bone". It is an amazing experience.
Well, I'll finish up this post at a later time. We are about to go to the zoo. :) In the meantime, here are some fun pics of the trip.
Xoxo,
AC